Saturday, August 2, 2014
Whirlwind!!!
What a whirlwind we have been on! We had the EMG Monday and discovered that Addie does have a brachial plexus injury. Also, today we finally got a copy of the report and it appears that in that injury there is a tear in one of the primary branch of nerves. She has recovered 38% use of her arm back and her elbow has a lot of motion but her shoulder and wrist do not. Mike has been doing some research and we are anticipating surgery very shortly. I came home from Chicago Tuesday night, after visiting my newest little nephew :) to a day full of appointments Wednesday. We started Wednesday with an occupational therapist evaluation to work on getting Addie a splint for her wrist. The OT recommended we follow-up the EMG with a brachial plexus team not just the neurosurgeon who had referred for the test. She suggested Cincinnati's team because she has worked with them and seen very promising results. I had an appointment scheduled with Chicago's team for Sept 3 but Cincinnati was able to get us in this upcoming Tuesday so I took it. Our next appointment that day was with a feeding therapist because since we have started feeding her cereal we noticed she does not open her jaw all the way. The feeding therapist decided we needed to be seen once a month to work on some exercises with her jaw. She also mentioned that she is afraid Addie is aspirating her food as she eats, especially her cereal. We are going to go in for a swallow test next Friday August 8th to rule that in or out; and now for the time being we have to feed her at a certain angle with her face sideways in order to minimize the opportunity. Needless to say Wednesday was a long day!! Thursday did not get much easier. Thursday morning my littlest nephew was in the NICU, my grandpa found blood in his urine and went to the ER, and our dog had an unknown tumor in her spleen that burst like an aneurism causing internal bleeding which ended up killing her on the way to the vet. So yesterday Mike took the day off and we loaded up to come home for the weekend and then to head to Cincinnati Monday for her appointment Tuesday. Yet, in the midst of this all we continue to praise! We know that God is good and we know that God is faithful. It has been a long process and it appears it will be getting longer soon, but none of this changes God. We are truly finding that when we give it to God and it is not our burden to carry but His that His yoke truly is easy and the burden is light. Once again we are living out God's promises Matthew 11:28-30 “Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." We are tired it has been a long week but we are at rest and we do have peace. God has been faithful to us as we have been faithful to Him! Psalms 18:25 "To the faithful you show yourself faithful, to the blameless you show yourself blameless," We are able to walk in peace because we know that He is true and He will do what He has promised. We may not be able to see it all now and we may never but we know His word is true and we know what His word says, that is where our hope and comfort comes, not from the visible but from the invisible. "And we know that in all things God works for the good of those who love him, who[i] have been called according to his purpose." Romans 8:28. He will work good out of this yet and He will get glory that I know and that is enough for me. If He is glorified then I am satisfied.
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