Wednesday, August 10, 2016

Back in casts

Our sweet little Addie has been growing by leaps and bounds!  Physically she is getting taller and developmentally she is progressing like crazy! Addie has just lately learned how to get herself onto her knees and scoot. Then she mastered how to pull herself up and is cruising all over the furniture now! It has been so exciting!
Now though Addie is back in casts. Her physical growth mixed with the arthrogryposis and clubbed feet has lead to tight ankles again.Thankfully that can be corrected just through casting!
She will be in this set of casts for two weeks because the doctor is out of town next week and then will go into a second set for one week. She will probably need a third set especially on her right foot, but we will see. The boys were excited she had colors this time. Stephen picked the colors for her this set and Michael is picking the next set! The are also excited about drawing on them!
On another note we went to Cincinnati last week to see the geneticist doctor there. They agreed with the Seattle team and we will be doing a full genetic test on Addie, Mike & myself to see if there are any links to her conditions. They are in process of getting insurance approval before we begin. The hope is to do the blood work for the test in November or December when we would be returning her arm. The results will take 3-6 months because of the extreme detail of the testing.
It has been a lovely summer and Addie has been a champ through it all. We are so blessed to have the means to travel for her care! We are so thankful to the doctors and therapists here and there that God has lead us to. Addie is our little miracle girl! That she can smile after just getting her freedom taken away amazes me! Her attitude challenges me to rethink my attitudes in my struggles. We are so grateful for her in our lives and the blessing that she is!
Psalms 100
Shout for joy to the Lord, all the earth.
    Worship the Lord with gladness;
    come before him with joyful songs.
Know that the Lord is God.
    It is he who made us, and we are his;
    we are his people, the sheep of his pasture.
Enter his gates with thanksgiving
    and his courts with praise;
    give thanks to him and praise his name.
For the Lord is good and his love endures forever;
    his faithfulness continues through all generations.